Hi my name is Kristina, mother to, Aiden,  who contracted Group B Streptococcal (GBS) Meningitis at five weeks  of  life .

Aiden is now eleven months old and has several disabilities. He was transported to a hospital in Houston.  Upon arrival they  told us that, Aiden would not make it.

He had suffered from severe brain damage.

We stayed in the hospital for about a month. They released him to go home the neurologist could not tell us what Aiden would be capable of doing.

They were going to put a g tube in him because they thought he would not be able to bottle feed because he had been intubated  until two weeks before we left.  Because he  was breathing on his own I ask  them to let him try to eat on his own before leaving him an a feeding tube?   Thank God, Aiden showed them that he was able to suck from a bottle.

Aiden is still not sitting up by himself but he tries so hard.  He has some head control most of the time. When he doesn't want to do anything  he gets mad and shuts down. He doesn't move his hands and arms very much but he sure does kick his legs and  is so vocal even though he has profound hearing loss.  Our little angel has has come along way in our eyes. 

The news from the doctors is still bad  about his brain and other problems. 

We are praying that Aiden receives the cochlear implants (CI). They want to go in a do bilateral since the ossification has already started in both ears. The coordinator of the (CI) states even with all of the brain damage  this will give him a sense of well being. I  think it would do more than that.

 It's very hard on everyone in the family.  Our ten year old son has been and feels  left out because taking care of Aiden is a full time job and takes most of our time.  All of the time and hard work is worth every minute of it !!

I'm glad I found your website, better late then never. This has helped me in so many ways  coping and with our struggles with Aiden, because of all  the support I see and feel :) 

We know the road is long and hard but each moment, each day brings new tears of joy.

Aiden held his bottle for the first time last night with a little help. He only did it once but he did it.

I cried because I was so happy.  He has never done that before and to see him hold his bah bah made me really happy.

We pray God will continue to strengthen and guide us on the best ways to help Aiden. We ask Him to protect him as he goes through the treatments and surgeries ahead.

God bless all of you at Angels.  Everyone of you are in my prayers.

Thank you so much for letting have this time to share our darling, Baby Aiden  with you.

Kristina, EBA Aiden's mom

Sweet Aiden, I can tell you are a real little fighter and so is your mom! You keep on fighting and we'll keep on praying.

 

To mom, doctors don't know everything and a lot of times they are wrong. Go with YOUR gut! I know what you mean about Nathan. It is VERY hard on the siblings. I became a den mother, just to have 1 "alone" hour a week with my Kyle. It helped us both, he was getting 1-1 and I was feeling less guilty about the time I had to spend with the twins.

 

We'll keep on praying!  From Shirl
Mom to twin EBA's Kraig & Kristofer
survivors of meningococcal meningitis

My Dear Friend Kristina, Aiden and Family,

Thank You for sharing your Angel's story with us and giving us faces to connect the names

with. I know where you are and I know where you have been, The pain and heartbreak is the same. As tears pour down my face~ Knowing one more beautiful boy and  one more family has been attacked by this horrible disease makes  me mad, angry  and determined to keep fighting, to keep educating myself and most of all to support you and my Angel family anyway I can.  My sweet AIden- Remember  God is walking next to you while holding your hand. You are never alone and have many friends and family  that are praying for you everyday. I ask god to help you find the strength and determination to continue your journey and to show great progress everyday. You have a mom with wings and many special friends above.. You and your family are NOT alone ~ We were all blessed with an additional family of Angels.. And a Mama Bear who has given up her life for US.. That makes you a very special little boy and our families blessed as we join as one. .

Bigs Hugs and God Bless You My Dear Friends each and every day.

Lori Lynn Rowland (  Mom of Jena Rose~EB )

Beautiful, Angel Aiden...you are loved and watched over by many little one.  I am praying for you and your precious family everyday.  Always remember...God is with you!  Many He give your mom peace of understanding and may you have never-ending FAITH! 

Faithful Daughter Lana
HBA Gina (January 13, 2004)

 

Kristina, you all are in my prayers.  I prayed that the Great Physician will be guiding the physicians hands.

To Aiden and His Family
I received this in my email and I go to a prayer group and have forwarded
messages to pray for you!  Be strong and know that God is with you and we will continue to pray for you
everyday! Joanne

 

What a joy it was to meet you, Kristina and your beautiful little Earth Bound Angel, Aiden.  It was even more a pleasure to share the love of angels with you all. Frankie